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So Monday seemed about the same as Sunday for a while but as the day progressed my neck and shoulders hurt worse and also developed into quite a headache. It all grew progressively worse until at bedtime I wasn't sleepy and if I had been the headache, etc wouldn't have let me sleep. I spent several hours on the couch hoping the pain would fade and I could sleep. It was a very long miserable night. At some point it finally dawned on me that this was part of the IGG reaction. The reaction has been so much less I forget about it. Each month, usually later than I used to feel it, I get sick, then sicker and finally I realize that it is the IGG. I have really got to remember that the week after is a time to rest. I think it would be easier if I weren't trying to do too much. I need to get a lot of movies and simple food in the house and just rest all that week. Maybe next month I'll learn.
Back to Monday night. I did finally drift in and out of sleep until about 6:30 when I got in the bed with my husband. After he got up, I told him what had been going on and we decided that I would take plenty of pain meds and a half of a Xanax to help me relax and go to sleep. I threw in an extra 10 mg of prednisone to be sure. He made me a piece of plain toast to get it down because I was also nauseous. I finally slept until 11:30 when he called to check on me and decided to come home. I went back to sleep until he came. He fixed me a peanut butter & jelly sandwich and we watched a little TV until I drifted off again. I slept until 7 or 8 that night. I ate a piece of cheese toast and then went to bed. I read a while, took a sleeping pill and went to sleep.
I got up the next morning and my daughter and I were going to try to go for a walk around the park. I ate some cereal and then got up and put some clothes on. By that time I was about to fall down from weakness and dizziness so I hit the couch. We decided to give me time to rest and maybe we'd just walk around in the immediate vicinity of my house. I rested a while and we tried walking to her car to get something and I had to sit in the car to rest. After a bit she helped me back in the house and to the couch. I rested the rest of the morning and after lunch we planned to go pick up my car. I got to her car fine and when we got to the shop I walked to my car and spoke to the man then had to sit on the bumper and have my dtr support me. We went and ate lunch then came back. I got straight into the car and drove home where she helped me into the house. We almost didn't make it. I was falling out on the porch. I was extremely weak and upset. I hate that totally weak feeling. I feel weak and dependent enough during normal times but when I'm like that, I fall apart emotionally. These feelings are not me and that makes it worse. I want to tell people that I am a strong woman. I can take care of myself. I can support myself, but it's no longer true and that is very hard to accept. I guess humility isn't one of my personality traits. Somehow, I have to learn to accept the way things are and be strong in that. God help me to do that. (And I constantly thank him for my family. I couldn't make it without them. They keep me somewhat normal. Weird, huh?)