I have been keeping a running document with a brief note of my status each day. (Well, most days.) Looking back until 3/19 my last post here, I've had some joint pain and a bit of trouble with my neck but nothing too bad in the pain department. Overall my energy has been better than usual. I do seem to pay the price with a lot of times of real exhaustion. I have had a problem at times with slowing down when I'm tired. I can feel that I've done too much and know I should spend some quiet time on the couch but keep popping up to do something else. This continues until I can't pop up. I guess it's the extra prednisone.
I was on the go for 2 1/2 days last week and paid the price for the rest of the week. Although there were times when I still had some energy, they didn't last so long. I spent a lot of the last part of the week down or moving very slowly. Yesterday and the day before I started pretty well but totally zonked in the afternoon. I even took a nap yesterday. I paid the price for that last night. Even with a sleeping pill, it took quite a while to get to sleep and then I didn't get up until almost 9:00 this morning.
I am doing well this morning. Up and down, totally unpredictable. Hmmm, sounds like someone with Lupus. :)
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