Thursday, October 23, 2008

: > /

Yesterday I started working some on our office (where it goes if it has no place to go) I didn't do anything too physical. I mostly sat on the floor in the closet and worked on cleaning out our filing cabinet and refiling everything. I also brought a small plastic chest of drawers to put on the filing cabinet for all office supplies. So now I guess sitting on the floor so long wasn't a good idea (who knew?). My left ? hurts. It's somewhere around where my pelvis & hip join. It feels swollen and bruised and I limp and can't put any weight on it when I sit.
Other than that I did pretty well yesterday and feel okay this morning. I woke at 6:30 and didn't feel sleepy, which is very unusual. I often wake fairly early but I'm usually stiff, tired & sleepy.
I'm not sure what I'm going to work on today but I'll have to conserve my strength. We're driving to Athens tomorrow to watch my husband's neice in the flag corp. It may rain in which case we'll just go spend the night with his brother & see her on Saturday for her birthday. I'm not going to sit out in the cold rain. That would be insane!
Not sure if my daughter will be coming over for yoga or walking this morning or if she's working at the school. I don't know if excercise would hurt or help my hip. We'll see.
I just realized that one thing people don't know about lupus is how much I have to try to diagnose myself and plan for everything I do. Everything I do requires planning. Will it be good for me or bad for me? Do I need sunblock, a hat, long sleeves? Will it be too much for me so that I can't do something else I need to do? When I worked, there were less questions. I worked, came home, took medication and collapsed on the couch. On the weekends I spent most of my time on the couch recovering from the week (except those times when I didn't recover and had to continue the weekend into the week.). I couldn't plan anything on weeknights and had to be very careful about anything on the weekend. If I had a birthday party for one of the kids, I couldn't do anything else but save energy for that. If I had two things to do on a weekend, I was wiped out.
Even now, times when I feel good I have to keep in mind that I can't overdue. I have to make myself stop and rest. I try to Tivo programs that I might want to watch when I force myself to lie still. Being still isn't easy for me so I need distraction. I love to read but I'm afraid that would put me to sleep. When I don't feel well, holding a book for any length of time gets too uncomfortable.
Lupus is so complicated.

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